My name is Lleyton Coombes. I was born on the 17th December 2006 and I have a very rare disease called Niemann Pick type c. (Sometimes referred to as baby Alzheimers). That’s why I can no longer talk, why I cannot learn to read or write, why I cannot dress myself, go to the toilet, started having seizures and one day I will not be able to walk, see or hear. At the moment there is no cure for my illness but the doctors are trying really hard to find a cure to save me!!!
Please support me and my family on our journey of hope. Our aim is to create awareness of Niemann Pick type C and raise funds for vital research in to treatment or a cure for this devastating disease.
Lleyton's 10th Birthday party #SnowBall was amazing, we would like to thank everyone who attended and celebrated this great day with us. Lleyton was so excited and even lost his voice, we have uploaded the photos from the photobooth onto our facebook page for you all to see.
we hope you all had a great night as we did and now more people know and have heard about Niemann Pick Disease.
go to our campaign video page to see our new video and share with your family and friends.
big thank you to the people that have offered ther services
MICKY VALENTE - DJ & COMPARE
BOW SO SWEET - EVENT DRESSING
PURE - PROGRAM
VICKI ALLEN - VICKI ALLEN PHOTOGRAPHY
ELITE DJS AND EVENTS - TABLE SPONSOR
PINK BUTTERFLY BOUTIQUE
CHOC CHOC MOOKIE
FROST CHARITABLE FOUNDATION
watch the space!
Well Gary Barlow tweeted saying he has done his last milestone birthday, we would like to thank everyone that got involved over the last few months and help us raise some amazing awareness for Lleyton and Niemann Pick Disease and we would like to thank Gary for giving us the opportunity to give it ago and well done to all the people whos campaigns was successful
NEED YOUR HELP AND IDEAS
Do you have a Talent, a service, bussiness, a venue that you could donate to help us out with future events, or do you have any ideas that could help us raise more awareness/funds and the Pride in Lleyton profile
If you would like to be added to our mailing list for future events and ticket sales to avoid disappointment please email@example.com
We would like to say a BIG Thank You to Shop2Drop for there very kind donation of £1000, at the recent fashion show we held.
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check out ther website