My name is Lleyton Coombes. I was born on the 17th December 2006 and I have a very rare disease called Niemann Pick type c. (Sometimes referred to as baby Alzheimers). That’s why I can no longer talk, why I cannot learn to read or write, why I cannot dress myself, go to the toilet, started having seizures and one day I will not be able to walk, see or hear. At the moment there is no cure for my illness but the doctors are trying really hard to find a cure to save me!!!
Please support me and my family on our journey of hope. Our aim is to create awareness of Niemann Pick type C and raise funds for vital research in to treatment or a cure for this devastating disease.
THERES A BIG EVENT COMING UP, ONE FOR YOUR DIARY!!! SATURDAY 17TH DECEMBER 2016!
We know a year may seem far away now but we are holding a BIG 10th Birthday party for Lleyton, this is going to be a very big milestone in Lleyton's life as he reaches double fighers, so we want to make this a big celebration and we will be holding a Ball to help celebrate Lleyton's birthday and help raise vital awareness for this horrible disease.
If you can help in any way by providing your service with entertainment, room decoration, photographer, raffle, auction items or anything else that will be good for the night please get in touch with one of the team..
You will be seeing more post about this event in the new year, when we will have more details on ticket prices etc.
We would love to see you all there..
As some of you that follow Lleyton's story on facebook and twitter we have a #singforlleyton campaign going to get Gary Barlow to come and sing at Lleyton's 10th Birthday in December, as a few months ago Gary put a tweet out asking for people to campaign to get him to sing at there milestone birthday and we thought that we would give it ago as this is a great milestone in Lleyton's life with him getting to double figures.. How you can HELP is by taking a picture simalar to the one Lleyton has done here and send it to Gary Barlow on twitter and facebook using the #singforlleyton @garybarlow or you can send it to one of the Pride in Lleyton team and we will do the rest, Thank You!
NEED YOUR HELP AND IDEAS
Do you have a Talent, a service, bussiness, a venue that you could donate to help us out with future events, or do you have any ideas that could help us raise more awareness/funds and the Pride in Lleyton profile
If you would like to be added to our mailing list for future events and ticket sales to avoid disappointment please firstname.lastname@example.org