• Since i last wrote on here a lot has changed, Lleyton was rushed to hospital on the 5th september 2014 due to his first seixure that he couldn't get out of for around 2 hours without the help of medication at the hospital where he had to stay in over night for regular checks and slept for over 15 hours, now he is on 2 medications trying to keep the seizures under control.

    Lleyton turned 8 on his birthday where he went bowling with his family and loved ever minute of this as love watching all the kids play.

    Christmas 2014 it gets harder every year in trying to find things to buy Lleyton as he has most electricals as one boy can have so we went for his next favourate thing (FOOD) where we did him a really big food hamper that had all his favourite things that he love and also dvds and books, soon as he seen the hamper he got stuck straight into it and was very happy which made me and Lee happy :-).

    New years eve we spent a few days at Lleyton's nana Hayleys caravan with his family where we celebrated the new year all together and went out for a meal on new years day.

    Sadly on the 9th April Lleyton lost his Great Grandad Barry (Lee's grandad) and this was a great shock to the family and very hard for them all, it was a very bitter sweet day as when we found out there grandad had died we were told the news that Lee's cousin Jamie had give birth to the beautifl Alexis and we beleive that Barry was watching over them both to help Jamie through the few days of labour she had.

    after the sadness of Lee's grandads passing we just wanted to spend some family time together away so we booked a holiday to the Holiday Village Costa De Sol where we spent 11 days of fun in the sun and Lleyon was so happy and loving the water fountains and entertainment and being cheeky and helping himself to the crisp from behind the bar hah but now we are back to reality and Lleyton is back at school with his friends,

    we went to Lleyton's assembly where his class was showing us what they have been doing in there lessons, by parading around in the hats they have made and sang and signed along to a song then played instruments to another song were they had to do there instrument at the right time and Lleyton is sat there with his bells and as soon as it came to his bit he started shaking his bells and I just burst into tears of pride and sadness at the same time knowing what this horrid disease is doing to my child it is killing me inside.



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